The Associate Director, Patient Engagement team member is a field-based position that supports patients and patient groups on the local level. The team member must be fluent in both Spanish and English speaking, reading and writing. In collaboration with Patient Engagement, North America and other PTC teams, the Patient Engagement team member identifies, educates, builds and leverages patient/caregiver and Patient Advocacy Organization relationships and when appropriate may be asked to assist patients with removal of access barriers to gain coverage for marketed products. The incumbent ensures that compliance and adherence goals are consistent with corporate goals. He/she builds patient advocacy and relationships for both currently marketed products and those in development consistent with applicable regulations. PTC Patient Engagement is committed to patients and strives to develop and maintain strong relationships with patient communities. Patient/Caregiver perspectives are important as we work to understand their needs.
This role works closely with the global, regional and commercial teams to ensure that strategies and activities are aligned and leveraged to support the corporate platform. He/she interfaces with the PTC communications team to provide support in promoting corporate patient-centricity. The incumbent also works with medical and legal colleagues to ensure all activities meet internal and external standards and reflect country guidelines and regulations. The incumbent works cross-functionally with internal departments and external resources on Patient Advocacy related issues.
The Patient Engagement team member supports adherence to relevant regulatory requirements and company Standard Operating Procedures (SOPs) as appropriate.
Incumbent will be supporting Southwest Region, must be bilingual in both English and Spanish
Identifies and routinely meets with patient advocacy and patient groups to ensure information and resources needed to appropriately support patients that are candidates for marketed PTC products; evaluates new opportunities and programs for collaboration and support; assists in building and executing local level patient programs, where applicable; assists with clinical trial recruitment.
Collaborates with the commercial teams to asses and develop business cases and oversee execution for local/regional patient advocacy support, that may include field based positions responsible for:
Ensuring program compliance;
Collecting and evaluating metrics;
Organizing regional and local patient programs.
Helps advance maturity and effectiveness of advocacy groups in achieving the independent goals of those groups by:
Connecting groups to enable sharing of best practices;
Facilitating connectivity to resources and programs to improve effectiveness and services offered to membership.
Collects and champions patient insights throughout PTC by:
Conducting patient advisory boards that shape cross functional initiatives and provide PTC teams with valuable patient insights and perspectives;
Assisting PTC in the development of voluntary processes and programs that help improve patient adherence and expand patient support initiatives based on feedback from patient groups and advocacy organizations;
Proactively and routinely sharing insights from patient advocacy groups to drive and shape programs, research and activities.
Supports the global development of North American national and local patient advocacy organizations through:
Building relationships with, and serves as an ambassador to, priority leaders around shared interests in patient education and support, drug development, approval, appropriate use and access to optimal care;
Linking appropriate patient groups with the information and resources needed to support patients and caregivers to advocate for appropriate care;
Facilitating development of patient communities while following relevant laws, regulations, policies and best practices;
Facilitating sharing of best practices among global, regional and local patient and other advocacy organizations within assigned territories;
If needed, fostering the development of umbrella organizations in a fragmented environment to unify the patient voice and encourage the engagement of member groups at the country and regional levels.
Prepares and mobilizes patients to advocate for appropriate care and new therapies with approval and reimbursement agencies where appropriate.
Introduces and engages company colleagues and consultants, as appropriate, to ensure the patient voice is heard and reflected in relevant internal and external policies, procedures and programs. In collaboration with appropriate government affairs associates, supports the advancement of policy positions that embrace open access to medicine, appreciation of innovation and the importance of optimal treatment.
This position is specific to Bilingual (English/Spanish) Patient Engagement (Associate Director), which is responsible for relationships with the Spanish speaking community and patient advocacy groups, locally and nationally.
Demonstrated, in-depth experience working with patients and/or advocacy groups.
Working knowledge of Health Insurance Portability and Accountability Act (HIPAA) and the pharmaceutical reimbursement process and insurance coverage
Empathy and emotional intelligence.
Excellent understanding of the pharmaceutical delivery process.
Excellent ability to maintain compliance and confidentiality.
Ability to influence without direct authority.
Must be fluent in both Spanish and English speaking, reading and writing.
Proficiency with Microsoft Office.
Excellent verbal and written communication and presentation skills (including the ability to explain technical information to non-technical audiences; must be able to explain complex medical terminology in simple laymen’s terms fluently in both English and Spanish).
Ability to work independently and collaboratively, as required, in a fast-paced, matrixed, team environment consisting of internal and external team members.
Analytical thinker with excellent problem-solving skills and the ability to adapt to changing priorities and deadlines.
Excellent planning, organization and time management skills including the ability to support and prioritize multiple projects.
Ability to travel extensively throughout assigned territory and country.
Valid driver’s license and clean driving record.
* Minimum level of education and years of relevant work experience.
Bachelor’s degree, preferably in a related business, clinical or scientific discipline; a minimum of 3 years of experience in a pharmaceutical, biotechnology or related environment. Roles may include but not limited to case management, sales, patient advocacy, and marketing.
* Special knowledge or skills needed and/or licenses or certificates required.
Must be fluent in both Spanish and English speaking, reading and writing.
* Travel requirements
50 – 75%
*Physical requirements (only note if the job requires physical capacity beyond general office work)
Field-based position located in the continental US, with easy access to a major airline travel hub, preferably in the Southwest, however not limited to this area. Travel as required: driving, airline, and/or public transportation.
PTC Therapeutics is an equal opportunity employer. We welcome applications from all individuals, regardless of race, color, national origin, gender, age, physical characteristics, social origin, disability, religion, family status, pregnancy, sexual orientation, gender identity, gender expression, disability, veteran status or any unlawful criterion under applicable law. We are committed to treating all applicants fairly and avoiding discrimination.